Projects per year
Personal profile
Biography
Professor Eneida Mioshi trained as an occupational therapist at the University of Sao Paulo (USP), Brazil. While working as an independent occupational therapist in Sao Paulo, she undertook a MSc in Sciences at USP. Upon completion of her MSc, she relocated to Cambridge, UK, in 2003. Eneida then started full-time clinical research work at the Department of Clinical Neurosciences at Cambridge University, followed by a concomitant PhD in Applied Cognitive Psychology at the MRC Cognition and Brain Sciences Unit (CBU). Her PhD investigated the practical impact of Frontotemporal Dementia (FTD) on everyday life, particularly in relation to loss of independence, FTD progression and how to better stage it, and the impact of the FTD on family carers’ well-being. Her PhD supervisor was Professor John Hodges.
Eneida relocated to Neuroscience Research Australia in Sydney in 2007, to start a postdoctoral role with Prof Hodges, testing ways to better support family members affected by FTD. A few years later, she was awarded an Australian NHMRC Postdoctoral Fellowship, taking her research experience from FTD into Motor Neuron Disease (MND), also known as Amyotrophic Lateral Sclerosis (ALS). She has developed a programme of research investigating non-motor symptoms in MND/ALS, particularly focused on cognitive and behavioural symptoms which overlap with FTD. Eneida was awarded several project grants in this field (MNDRIA), working closely with Professor Matthew Kiernan.
In 2013, Eneida returned to the UK to work at the Department of Psychiatry at Cambridge University. She subsequently was awarded an Alzheimer’s Society Senior Fellowship and was appointed Chair of Dementia Care Research at the School of Health Sciences, University of East Anglia, in 2015. She was appointed Deputy Director of the NIHR Applied Research Collaboration – ARC (then CLAHRC) in 2016, and has been the NIHR ARC Academic Career Development Lead since 2017. Eneida is involved in various programmes from the NIHR Academy, and other early career initiatives such as the Wellcome PhD programme established between the Universities of Cambridge and University of East Anglia.
Eneida continues to develop her research programme in dementia and neurodegeneration in general, with a particular focus on FTD and MND, investigating the impact of cognitive and behavioural symptoms on disease progression, and their interaction with family carers’ skills in managing a progressive condition. She continues to investigate and develop novel approaches to systematically support family members in coping with behavioural symptoms, which can be emotionally challenging for them, funded by grants from the MND Association, MND Scotland, and other UK funding bodies. Eneida recently completed the first national feasibility study to test a novel online intervention, MiNDToolkit, to support family members affected by behavioural symptoms in MND/ALS.
Academic Background
Alzheimer's Society Senior Research Fellowship
Hosted at the University of East Anglia
NHMRC Early Career Research Fellowship
Hosted at the Neuroscience Research Australia. Sydney, Australia
PhD in Applied Cognitive Psychology
University of Cambridge, MRC – Cognition and Brain Sciences Unit. Cambridge, UK
Masters Degree in Sciences
University of Sao Paulo. Sao Paulo, Brazil
BSc Honours, Occupational Therapy
University of Sao Paulo. Sao Paulo, Brazil
Education/Academic qualification
Master of Science, Universidade de Sao Paulo
Doctor of Philosophy, University of Cambridge
External positions
Deputy Director, NIIHR Applied Research Collaboration East of England
31 Oct 2016 → Jun 2023
Deputy Director, NIHR CLAHRC - East of England
1 Oct 2016 → Sep 2019
Academic Career Development Lead, NIHR ARC East of England
1 Oct 2016 → …
Media Expertise
- Dementia
Collaborations and top research areas from the last five years
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Standardisation of carer support across the FTDMND spectrum: the FTDToolkit
Mioshi, E., Khondoker, M. & Backhouse, T.
Motor Neurone Disease Association
1/10/24 → 30/09/27
Project: Research
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NIHR ARC DEM-COMM Extension
Mioshi, E., Crozier, K., Backhouse, T. & Camino, J.
National Institute for Health and Care Research
1/10/24 → 31/03/26
Project: Research
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NIHR Applied Research Collaboration Extension
Crozier, K., Crozier, K., Farquhar, M., Hornberger, M., Mioshi, E., Sanderson, K., Wagner, A., Burrows, S., Franks, L., Gardener, C., Gillings, R., Grotz, J., Miners, L., Beresford, P., Cameron, R., Peryer, G. & Risebro, H.
National Institute for Health and Care Research
1/10/24 → 31/03/26
Project: Research
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ARC East of England PhD Studentship
National Institute for Health and Care Research
1/10/19 → 30/09/25
Project: Training
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MiND Toolkit Symposium for Healthcare Professionals
Motor Neurone Disease Association
6/04/23 → 30/09/23
Project: Research
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Understanding the impact of dementia on spousal relationships: A qualitative study with female spousal carers of people living with dementia
Van Hout, E., Contreras, M., Mioshi, E. & Kishita, N., Jan 2025, In: Dementia-International Journal of Social Research and Practice. 24, 1, p. 23-39 17 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Downloads (Pure) -
An online intervention for carers to manage behavioral symptoms in motor neuron disease (MiNDToolkit): A randomized parallel multi-center feasibility trial
Mioshi, E., Grant, K., Flanagan, E., Heal, S., Copsey, H., Gould, R. L., Hammond, M., Shepstone, L. & Ashford, P. A., Jul 2024, In: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 25, 5-6, p. 506-516 11 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile2 Citations (Scopus)6 Downloads (Pure) -
Cut-off scores for mild and moderate dementia on the Addenbrooke's Cognitive Examination-III and the Mini-Addenbrooke's Cognitive Examination compared with the Mini-Mental State Examination
McCarthy, L., Rubinsztein, J., Lowry, E., Flanagan, E., Menon, V., Vearncombe, S., Mioshi, E. & Hornberger, M., Feb 2024, In: BJPsych Bulletin. 48, 1, p. 12-18 7 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)277 Downloads (Pure) -
Describing and assessing behavioural symptoms in amyotrophic lateral sclerosis with and without frontotemporal dementia: A scoping review
Trucco, A. P., Backhouse, T. & Mioshi, E., Oct 2024, In: Current Opinion in Neurology. 37, 5, p. 603-610 8 p.Research output: Contribution to journal › Review article › peer-review
1 Citation (Scopus) -
Factors affecting anticipatory grief of family carers supporting people living with motor neurone disease: the impact of disease symptomatology
Trucco, A. P., Khondoker, M., Kishita, N., Backhouse, T., Copsey, H. & Mioshi, E., Nov 2024, In: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 25, 7-8, p. 776-784 9 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)10 Downloads (Pure)
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NIHR SPARC Award Panel (External organisation)
Eneida Mioshi (Member)
2017 → 2021Activity: Membership › Peer review panel
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BMC Neurology (Journal)
Eneida Mioshi (Associate Editor)
2014 → 2017Activity: Editorial work › Publication editorial role
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Journal of Alzheimers Disease (Journal)
Eneida Mioshi (Editorial board member)
2010 → …Activity: Editorial work › Publication editorial role
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Dementia and Geriatric Cognitive Disorders (Journal)
Eneida Mioshi (Editorial board member)
2010 → …Activity: Editorial work › Publication editorial role
Press/Media
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Funding boost for dementia research careers at UEA
11/07/22
1 item of Media coverage
Press/Media: UEA Press Release
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De cluttering may not help people with dementia
26/11/21
1 item of Media coverage
Press/Media: UEA Press Release
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Hyderabad: Key dementia test now available in Telugu at Nizam's Institute of Medical Sciences
23/03/20
1 item of Media coverage
Press/Media: Media Coverage or Contribution
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Key dementia test now available in 7 Indian languages (Ld)
21/03/20
1 item of Media coverage
Press/Media: Media Coverage or Contribution
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Dementia test to expand diagnosis across India
19/03/20
1 item of Media coverage
Press/Media: UEA Press Release