Projects per year
Personal profile
Areas of Expertise
Person-Centred Care, Support Needs, Unpaid/Family Carers, Supportive Care, Palliative Care, Breathlessness in Advanced Disease
Biography
Morag has worked in health services research for over 30 years, predominantly in palliative and supportive care. She has worked for health authorities in London, and within the universities of London, Manchester, Cambridge and East Anglia (UEA). An early graduate nurse by background (King’s College London), she holds a Masters in Medical Sociology and PhD (University of London) on the definition and measurement of quality of life in older people. Research interests include person-centred care, supportive/palliative care, unpaid/family carers, breathlessness in advanced disease, older people, and methodology – particularly the development and testing of interventions and mixed methods.
At UEA she leads a research programme on improving care and support for patients and carers living with advanced disease, including the SNAP programme, Learning about Breathlessness programme, and Carer Support Nurse programme:
- SNAP (the Support Needs Approach for Patients): an award-winning intervention to enable person-centred care for people with chronic or progressive conditions, funded by Marie Curie: https://thesnap.org.uk
- Learning about Breathlessness (LaB) has developed a web-based educational intervention for unpaid carers of patients with breathlessness in advanced malignant and non-malignant disease: https://supporting-breathlessness.org.uk/ LaB2 was funded by an NIHR Research for Patient Benefit grant
- The Carer Support Nurse programme has developed and piloted a novel award-winning Carer Support Nurse role to support unpaid/family carers with complex health and wellbing needs: https://arc-eoe.nihr.ac.uk/research-implementation/research-themes/palliative-and-end-life-care/carer-support-nurse-pilot/
- A programme of research related to the Carer Support Needs Assessment Tool Intervention (CSNAT-I) has extended the reach of this internationally-adopted intervention to carers of patients with chronic or progressive conditions (CSNAT v3), explored its relevance for young carers and is investigating its relevance for carers from ethnic minority groups: https://csnat.org/
These projects build on work conducted at University of Cambridge as a Senior Research Associate and NIHR Career Development Fellow, including the Living with Breathlessness Study and the LaB1 Study (first study in the Learning about Breathlessness programme). The Living with Breathlessness Study was a collaboration between Cambridge, King’s College London and RAND Europe on patient and carer need and care preferences in advanced COPD. She was also lead researcher on the RCT of the internationally-recognised Cambridge Breathlessness Intervention Service, developed following the MRC framework for complex interventions in collaboration with Dr Sara Booth (Addenbrooke’s Palliative Care Team) and colleagues.
Morag is theme lead for NIHR ARC East of England’s Palliative and End of Life Care theme: https://arc-eoe.nihr.ac.uk/research-implementation/research-themes/term-palliative-and-end-life-care
She has collaborated and published with colleagues internationally in the field of breathlessness in advanced disease and palliative care methodology (Canada and Australia) and carer support (Sweden).
In addition Morag has a teaching role at UEA, including co-leading an online post-registration module on Using Evidence to Lead and Advance Practice, and post-graduate supervision.
Follow this work on Twitter: @MoragCFarquhar | @SNAPstudyteam | @LaB2_Study
Education/Academic qualification
Bachelor of Science, Nursing Studies, King's College London
Doctor of Philosophy, Queen Mary University of London
Master in Science, Sociology with Special Reference to Medicine, Royal Holloway, University of London
Media Expertise
- Nursing and care
Collaborations and top research areas from the last five years
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NIHR Applied Research Collaboration Extension
Crozier, K., Crozier, K., Farquhar, M., Hornberger, M., Mioshi, E., Sanderson, K., Wagner, A., Burrows, S., Franks, L., Gardener, C., Gillings, R., Grotz, J., Miners, L., Beresford, P., Cameron, R., Peryer, G. & Risebro, H.
National Institute for Health and Care Research
1/10/24 → 31/03/26
Project: Research
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The clinical and cost effectiveness of internet-delivered self-help Acceptance and Commitment Therapy for family carers of people with dementia (iACT4CARERS): A randomised controlled trial with ethnically diverse family carers
Kishita, N., Farquhar, M., Khondoker, M., Hammond, M., Pond, M. & Turner, D.
National Institute for Health and Care Research
1/06/22 → 31/05/26
Project: Research
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How can healthcare professionals work with families to address misaligned expectations of recovery in brain injury rehabilitation? A scoping review
Blake, J., Peryer, G., Dance, R., Parke, S., Aryankhesal, A. & Farquhar, M., 3 Feb 2025, (E-pub ahead of print) In: Brain Injury.Research output: Contribution to journal › Review article › peer-review
Open AccessFile -
Carers’ and therapists’ views of internet-delivered guided self-help Acceptance and Commitment Therapy for family carers of people with dementia (iACT4CARERS): A qualitative study in the context of ethnic minority families
Kishita, N., Czyznikowska, B., Riggey, M., Van Hout, E., Richmond, E., Gould, R. L., McCracken, L. M. & Farquhar, M., 26 Mar 2024, In: Cognitive Behaviour Therapist. 17, e11.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)4 Downloads (Pure) -
Comprehensive geriatric assessment for people with both COPD and frailty starting pulmonary rehabilitation: a mixed-methods feasibility trial
Brighton, L. J., Evans, C. J., Farquhar, M., Bristowe, K., Kata, A., Higman, J., Ogden, M., Nolan, C., Yi, D., Gao, W., Koulopoulou, M., Hasan, S., Ingram, K., Clarke, S., Parmar, K., Baldwin, E., Steves, C. J., Man, W. D-C. & Maddocks, M., 1 Jul 2024, In: ERJ Open Research. 10, 4, 00774-2023.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Downloads (Pure) -
The clinical and cost effectiveness of internet-delivered self-help Acceptance and Commitment Therapy for family carers of people with dementia (iACT4CARERS): Study protocol for a randomised controlled trial with ethnically diverse family carers
Kishita, N., Gould, R. L., McCracken, L. M., Khondoker, M., Turner, D. A., Ashford, P-A., Flanagan, E., Czyznikowska, B., Richmond, E., Riggey, M., Trucco, A. P., Hammond, M., Nautiyal, A. & Farquhar, M., Nov 2024, In: Contemporary Clinical Trials. 146, 107685.Research output: Contribution to journal › Article › peer-review
Open AccessFile8 Downloads (Pure) -
Understanding and addressing factors affecting carers’ mental health during end-of-life caregiving: synopsis of meta synthesis of literature and stakeholder collaboration
Grande, G. E., Rowland, C., Shield, T., Bayliss, K., Flynn, J., Harris, D., Wearden, A., Farquhar, M., Panagioti, M., Hodkinson, A., Booth, M., Cotterill, D., Goodburn, L., Knipe, C. & Bee, P., 4 Oct 2024, (Accepted/In press) In: Health and Social Care Delivery Research.Research output: Contribution to journal › Review article › peer-review
Prizes
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1st Prize Poster Exhibition award at International Association for Hospice and Palliative Care International Palliative Care Network Conference, 2017
Luckett, Tim (Recipient), Phillips, Jane (Recipient), Johnson, Miriam J. (Recipient), Farquhar, Morag (Recipient), Swan, Flavia (Recipient), Assen, Teresa (Recipient), Bhattarai, Priyanka (Recipient) & Booth, Sara (Recipient), 15 Nov 2017
Prize: Prize (including medals and awards)
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Awarded invited keynote oral for best scientific original abstract at Primary Care Respiratory Society annual conference 2019
Farquhar, Morag (Recipient), Ewing, Gail (Recipient) & Barnes, Sylvia (Recipient), 19 Sept 2019
Prize: Prize (including medals and awards)
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Best poster abstract in category - 11th European Association for Palliative Care World Research Congress 2020
Farquhar, Morag (Recipient), Barnes, Sylvia (Recipient) & Ewing, Gail (Recipient), 7 Oct 2020
Prize: Prize (including medals and awards)
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Best poster abstract in category at 11th European Association for Palliative Care World Research Congress for Gardener AC, Ewing G, Deaton C, Farquhar M. Enabling patients with progressive conditions to identify and express their support needs – a thematic systematic review of interventions
Gardener, Carole (Recipient), Ewing, Gail (Recipient), Deaton, Christi (Recipient) & Farquhar, Morag (Recipient), 7 Oct 2020
Prize: Prize (including medals and awards)
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Finalist in Royal College of Nursing (RCN) awards 2023 for Carer Support Nurse pilot (Innovations category)
Farquhar, Morag (Recipient), 11 Nov 2023
Prize: Prize (including medals and awards)
Press/Media
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Informal carers need more support now than ever (May 2020)
4/05/20 → 6/05/20
2 items of Media coverage
Press/Media: Media Coverage or Contribution
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Elderly should consider residential care before a 'health crisis'
6/09/19
1 item of Media coverage
Press/Media: UEA Press Release
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Elderly feel more in control of lives when they move to a care home earlier
6/09/19
1 item of Media coverage
Press/Media: Media Coverage or Contribution
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New Tool Identifies Support Needs of COPD Patients, Helping to Make Care More Personal and Holistic
22/03/19
1 item of Media coverage
Press/Media: Media Coverage or Contribution
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Pioneering research to deliver person-centred care
7/03/19
1 item of Media coverage
Press/Media: UEA Press Release