Projects per year
Steve is a social scientist with 16 years research experience on health and health policy-related issues, and on related questions of poverty, livelihoods, and policy implementation. He holds a PhD in Health Policy from the London School of Hygiene and Tropical Medicine, University of London (2001) and an MA in Development Studies from UEA (1993). He lived in Sri Lanka for 5 years, where he has conducted research on treatment seeking behaviour, illness costs and related household coping strategies, the links between illness and poverty, and health sector reform.
His recent research focuses on social aspects of HIV and AIDS, and in particular people’s management of HIV as a chronic condition when taking antiretroviral therapy (ART). Using social and psychological frameworks, the research examines people’s adaptive strategies, their self-management, their work to rebuild lives and livelihoods, and to regain order and control. This work started in rural Uganda in 2005 on a project funded by the Centers for Disease Control, and in 2010 Steve won an ESRC grant to extend the work in Entebbe, Uganda (working in collaboration with the MRC), using both qualitative and quantitative methods to explore people’s self-management on ART and mental and physical health outcomes.
Steve is a founder member of the HIV & Development Group at UEA (HIV UEA)
CV and Experience
Key Research Interests
Social science research on household and community health, and recently focusing on HIV and AIDS. Factors influencing treatment seeking behaviour, illness costs and the economic burden of illness, related individual and household coping strategies, resilience, and the links between illness and impoverishment. Social analysis of HIV and AIDS, focusing on the social and economic impact of HIV on individuals and households, and people’s self-management of HIV as a chronic condition: their adaptive strategies, self-management and adjustment. Demand-side approaches to health system development, particularly people’s trust in, access to and uptake of health care services, and health policy as social protection policy tool. Primary research experience in Sri Lanka, Uganda, Thailand, Ethiopia and South Africa. Earlier research focused on health policy analysis, particularly health financing and equity, decentralization and organizational capacity, and wider institutional environments that enable or constrain health sector reform processes.
Research Groups: Health and Disease
The economic burden of illness for households
Research expertiseon the economic burden of illness for households, measuring access, treatment behaviour, the costs of illness, strategies adopted by households to cope with costs, and the medium term impact of illness costs and strategies on household livelihood and poverty outcomes. Developed conceptual and methodological approaches for the analysis of household vulnerability to illness-related impoverishment, and factors affecting household resilience to illness costs. His work also includes user trust in health services and its influence on access and uptake of health services. He has conducted primary research on illness costs, impoverishment and factors influencing resilience in Sri Lanka (ESRC-funded) and worked on similar research in Ethiopia (SCF-funded) and South Africa (Wellcome Trust). Stevewas a co-investigator on a Wellcome Trust-funded project (2006-8) in rural South Africa, in collaboration with LSHTM and the University of Witwatersrand, that examined people’s access to health care services, and the influence of free PHC, hospital exemptions, pensions and other cash transfers on access to and affordability of health care. He was then a co-investigator on an ESRC-Hewlett-funded research project (2008-10) in Burkina Faso that measured the impact of obstetric complications on economic, social and health outcomes for women and their families over a 4 year period, working with colleagues at LSHTM and GREFSaD in Bobo-Dioulasso.
Social aspects of HIV and AIDS, focusing on people’s self-management of HIV on antiretroviral therapy (ART)
Research in rural South Africa also examined people’s access to care for chronic health conditions, people’s management of chronic illness. His most recent research has focused on people’s management of HIV as a chronic condition in Uganda when taking ART: their adaptive strategies, their self-management and adjustment, and their work to rebuild lives and livelihoods, to regain order and control. This work started in rural Uganda in 2005 on a project funded by the Centers for Disease Control, and after publishing this work in 2010 Steve won an ESRC grant to take forward the work in Entebbe, Uganda, using both qualitative and quantitative methods to explore people’s self-management on ART and mental health outcomes.
Health financing policy
Steve’searlier workexamined the revenue and equity impacts of user fees, pre-payment schemes and other risk sharing or health insurance mechanisms, and factors influencing their impact. He has conducted research on the effectiveness of targeted exemptions to the poor and factors influencing exemption uptake and coverage, in South Africa, Thailand, Zimbabwe and Ethiopia and more recently Burkina Faso. In South Africa the research looked at health services from a social protection and social inclusion perspective, and analysed the synergies of free health care and cash transfers and how these influenced household resilience to illness-related shocks.
Health sector reform
Steve’s earlier research also looked at health service delivery and financing arrangements, and government capacity to deliver reforms to these arrangements. He conducted policy analysis in Sri Lanka and Zimbabwe of decentralization to district management boards or tertiary hospital management boards, and government capacity to design and implement reforms, looking at organizational capacity within Ministries of Health and the wider institutional and political environment that influences reform processes (DFID-funded and WHO-funded research).
Areas of Expertise
I enjoy teaching and always seek to engage students in the learning process through particiaptory and interactive sessions. I teach on health and development related topics, such as HIV and AIDS, at postgraduate and undergraduate levels. I also teach social theory and social development, and research methods. Where possible I incorporate my research into the subjects I cover at both postgraduate and undergraduate levels. I use a range of techniques, including lectures, workshops for practical exercises and smaller group work, and I use various media to enhance teaching and to illustrate development settings where possible.
I supervise PhD students who work on health-related issues that are related to my areas of expertise, and I am always keen to hear from people who wish to pursue new PhD research on questions related to HIV and other chronic illness management in resource poor settings, and on questions of health, illness and poverty.
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
- 4 Finished
Life on Antiretroviral Therapy: People's adaptive coping and adjustment to living with HIV as a chronic condition in Wakiso District, Uganda
Russell, S. & Seeley, J.
Economic and Social Research Council
1/11/10 → 31/08/13
Joint Master's in Sustainable Development Practice Programme
TERI School of Advanced Studies
1/01/10 → 31/07/11
UEA HEARD HIV Conference 7 - 8 May 2009
Seeley, J. & Russell, S.
1/02/09 → 30/04/10
Men’s refashioning of masculine identities in Uganda and their self-management of HIV treatmentRussell, S., 1 Jul 2019, In: Qualitative Health Research. 29, 8, p. 1199-1212 14 p.
Research output: Contribution to journal › Article › peer-reviewOpen AccessFile19 Citations (Scopus)17 Downloads (Pure)
The role of children in their HIV-positive parents’ management of antiretroviral therapy in UgandaNalugya, R., Russell, S., Zalwango, F. & Seeley, J., Mar 2018, In: African Journal of AIDS Research. 17, 1, p. 37-46 10 p.
Research output: Contribution to journal › Article › peer-reviewOpen AccessFile6 Citations (Scopus)9 Downloads (Pure)
Adjustment as process and outcome: Measuring adjustment to HIV in UgandaMartin, F., Russell, S. & Seeley, J., May 2016, In: Journal of Health Psychology. 21, 5, p. 872-883 10 p.
Research output: Contribution to journal › Article › peer-reviewOpen AccessFile23 Downloads (Pure)
Antiretroviral therapy and changing patterns of HIV stigmatisation in Entebbe, UgandaRussell, S., Zalwango, F., Namukwaya, S., Katongole, J., Muhumuza, R., Nalugya, R. & Seeley, J., Jan 2016, In: Sociology of Health & Illness. 38, 1, p. 58–72 15 p.
Research output: Contribution to journal › Article › peer-reviewOpen AccessFile27 Citations (Scopus)9 Downloads (Pure)
Finding Meaning: HIV self-management and wellbeing among people taking antiretroviral therapy in UgandaRussell, S., Martin, F., Zalwango, F., Namukwaya, S., Nalugya, R., Muhumuza, R., Katongole, J. & Seeley, J., 25 Jan 2016, In: PLoS One. 11, 1, e0147896.
Research output: Contribution to journal › Article › peer-reviewOpen AccessFile29 Citations (Scopus)10 Downloads (Pure)