Co-research with adults with intellectual disability: A systematic review

Claudio di Lorito, Linda Birt, Alessandro Bosco, Angela Hassiotis

Research output: Contribution to journalArticle

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Abstract

Background: Co-research with people with intellectual disability is a distinct form of patient and public involvement (PPI). This systematic review summarize published studies and protocols to report on the process of co-research in social and healthcare research.

Method: Relevant studies were identified using electronic searches on ASSIA, PsycInfo and MedLine. Study quality was assessed, and information relevant to the process of working with co-researchers was extracted and thematically analysed.

Results: Thirteen studies were retrieved. Data are reported under three themes: (i) challenges of co-research; (ii) facilitators of co-research; (iii) benefits of co-research. Best practice is presented as a model of co-research. Content analysis on 12 research protocols identified four themes related to PPI.

Conclusions: All stakeholders involved in co-research with people with intellectual disability can benefit, providing there is adequate infrastructure to accommodate and empower the co-researchers. Many current intellectual disability research projects still lack systematic involvement of PPI members.
Original languageEnglish
Pages (from-to)669-686
Number of pages18
JournalJournal of Applied Research in Intellectual Disabilities
Volume31
Issue number5
Early online date12 Dec 2017
DOIs
Publication statusPublished - Sep 2018

Keywords

  • co-research
  • intellectual disability
  • participatory research
  • patient and public involvement
  • systematic review

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