Commentary on patient advocacy and research priorities in olfactory and gustatory disorders

E. M. Garden; A. Espehana; D. Boak; N. Gadi; C. M. Philpott

doi:10.1007/s40136-023-00444-7

Commentary on patient advocacy and research priorities in olfactory and gustatory disorders

E. M. Garden, A. Espehana, D. Boak, N. Gadi, C. M. Philpott

Research output: Contribution to journal › Comment/debate › peer-review

1 Citation (Scopus)

9 Downloads (Pure)

Abstract

Purpose of Review: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs. Recent Findings: A recent Priority Setting Partnership (PSP) conducted with the James Lind Alliance (JLA) has been completed and the top 10 research priorities in SATDs determined. Fifth Sense, a UK charity, has been working alongside patient and healthcare professions to drive awareness, education and research in this area. Summary: Following the completion of the PSP, Fifth Sense have launched six Research Hubs to take forward these priorities and engage with researchers to carry out and deliver research that directly answers the questions raised by the results of the PSP. The six Research Hubs cover a different aspect of smell and taste disorders. Each hub is led by clinicians and researchers recognised for their expertise in their field, who will act as champions for their respective hub.

Original language	English
Pages (from-to)	1-8
Number of pages	8
Journal	Current Otorhinolaryngology Reports
Volume	11
Early online date	17 Feb 2023
DOIs	https://doi.org/10.1007/s40136-023-00444-7
Publication status	Published - Mar 2023

Keywords

Advocacy
Anosmia
Hyposmia
Olfactory disorders
Parosmia
Phantosmia

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s40136-023-00444-7Final published version, 1.14 MBLicence: CC BY

Cite this

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title = "Commentary on patient advocacy and research priorities in olfactory and gustatory disorders",

abstract = "Purpose of Review: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs. Recent Findings: A recent Priority Setting Partnership (PSP) conducted with the James Lind Alliance (JLA) has been completed and the top 10 research priorities in SATDs determined. Fifth Sense, a UK charity, has been working alongside patient and healthcare professions to drive awareness, education and research in this area. Summary: Following the completion of the PSP, Fifth Sense have launched six Research Hubs to take forward these priorities and engage with researchers to carry out and deliver research that directly answers the questions raised by the results of the PSP. The six Research Hubs cover a different aspect of smell and taste disorders. Each hub is led by clinicians and researchers recognised for their expertise in their field, who will act as champions for their respective hub.",

keywords = "Advocacy, Anosmia, Hyposmia, Olfactory disorders, Parosmia, Phantosmia",

author = "Garden, {E. M.} and A. Espehana and D. Boak and N. Gadi and Philpott, {C. M.}",

note = "Funding Information: Fifth Sense funded the Priority Setting Partnership using part of its grant from the National Lottery Community Fund, but there is no conflict of interest with this paper. Publisher Copyright: {\textcopyright} 2023, The Author(s).",

year = "2023",

month = mar,

doi = "10.1007/s40136-023-00444-7",

language = "English",

volume = "11",

pages = "1--8",

journal = "Current Otorhinolaryngology Reports",

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AU - Garden, E. M.

AU - Espehana, A.

AU - Boak, D.

AU - Gadi, N.

AU - Philpott, C. M.

N1 - Funding Information: Fifth Sense funded the Priority Setting Partnership using part of its grant from the National Lottery Community Fund, but there is no conflict of interest with this paper. Publisher Copyright: © 2023, The Author(s).

PY - 2023/3

Y1 - 2023/3

N2 - Purpose of Review: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs. Recent Findings: A recent Priority Setting Partnership (PSP) conducted with the James Lind Alliance (JLA) has been completed and the top 10 research priorities in SATDs determined. Fifth Sense, a UK charity, has been working alongside patient and healthcare professions to drive awareness, education and research in this area. Summary: Following the completion of the PSP, Fifth Sense have launched six Research Hubs to take forward these priorities and engage with researchers to carry out and deliver research that directly answers the questions raised by the results of the PSP. The six Research Hubs cover a different aspect of smell and taste disorders. Each hub is led by clinicians and researchers recognised for their expertise in their field, who will act as champions for their respective hub.

AB - Purpose of Review: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs. Recent Findings: A recent Priority Setting Partnership (PSP) conducted with the James Lind Alliance (JLA) has been completed and the top 10 research priorities in SATDs determined. Fifth Sense, a UK charity, has been working alongside patient and healthcare professions to drive awareness, education and research in this area. Summary: Following the completion of the PSP, Fifth Sense have launched six Research Hubs to take forward these priorities and engage with researchers to carry out and deliver research that directly answers the questions raised by the results of the PSP. The six Research Hubs cover a different aspect of smell and taste disorders. Each hub is led by clinicians and researchers recognised for their expertise in their field, who will act as champions for their respective hub.

KW - Advocacy

KW - Anosmia

KW - Hyposmia

KW - Olfactory disorders

KW - Parosmia

KW - Phantosmia

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DO - 10.1007/s40136-023-00444-7

M3 - Comment/debate

AN - SCOPUS:85148340851

VL - 11

SP - 1

EP - 8

JO - Current Otorhinolaryngology Reports

JF - Current Otorhinolaryngology Reports

SN - 2167-583X

ER -

Commentary on patient advocacy and research priorities in olfactory and gustatory disorders

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Commentary on patient advocacy and research priorities in olfactory and gustatory disorders

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