Conceptualising dementia crisis and preferences for resolution: A public perspective

Jennifer A. Yates, Miriam R Stanyon, Marcus Redley, Donna Maria Coleston-Shields

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Abstract

Background: Crisis intervention services for people with dementia in the United Kingdom are poorly defined with no standardized model of working. This may be due to the lack of a clear conceptualization of dementia crisis, resulting in variation in national service delivery. Methods: This study employed a novel public engagement questionnaire data collection technique with 57 participants to gain an updated perspective on the concept of health-related crisis from the point of view of the public. Results: Analysis revealed crisis as a transformational moment that may arrive unexpectedly but could also be the culmination of a sequence of events. Crisis resolution requires external and expert help, and associated feelings of panic and despair can engender the task of resolution by oneself insurmountable. Conclusions: Participants had clear expectations of crisis intervention services, with initial practical and emotional support to reduce risks, and a person-centered approach with family involvement.

Original languageEnglish
Pages (from-to)1-7
Number of pages7
JournalJournal of Primary Care and Community Health
Volume11
Early online date26 May 2020
DOIs
Publication statusPublished - 2020

Keywords

  • crisis
  • dementia
  • health services
  • public engagement

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