Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles

Jennifer Kirsty Burton (Lead Author), Arne Timon Wolters, Ann-Marie Towers, Liz Jones, Julienne Meyer, Adam Lee Gordon, Lisa Irvine, Barbara Hanratty, Karen Spilsbury, Guy Peryer, Stacey Rand, Anne Killett, Gizdem Akdur, Stephen Allan, Priti Biswas, Claire Goodman

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Abstract

Reforms to social-care in response to the COVID-19 pandemic, in the UK and internationally, place data at the heart of proposed innovations and solutions. The principles are not well established of what constitutes core, or minimum, data to support care home residents. Often, what is included, privileges data on resident health over day-to-day care priorities and quality of life. This Personal View argues for evidence-based principles to base the development of a UK minimum data set (MDS) for care homes. Co-produced work involving care home staff and older people working with stakeholders is required to define and agree the format, content, structure and operationalisation. Implementation decisions will determine the success of an MDS, impacting aspects including data quality, completeness, and useability. Care home staff who collect the data need to benefit from the MDS and see value in their contribution and residents must derive benefit from data collection and synthesis.
Original languageEnglish
Pages (from-to)e186-e193
Number of pages7
JournalThe Lancet: Healthy Longevity
Volume3
Issue number3
DOIs
Publication statusPublished - 1 Mar 2022

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