Development and validation of the disease-specific Short Bowel Syndrome-Quality of Life (SBS-QoL™) scale

P Berghöfer, K C Fragkos, J P Baxter, A Forbes, F Joly, H Heinze, S Loth, M Pertkiewicz, B Messing, P B Jeppesen

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Subjects with short bowel syndrome (SBS) have impaired quality of life (QoL). No disease-specific instrument has been available to measure treatment-induced changes in QoL over time. Therefore, the aim was to develop and validate an SBS-specific QoL scale.
Original languageEnglish
Pages (from-to)789-96
Number of pages8
JournalClinical Nutrition
Issue number5
Publication statusPublished - Oct 2013


  • Activities of Daily Living
  • Adult
  • Aged
  • Cost of Illness
  • Diarrhea
  • Double-Blind Method
  • Drug Resistance
  • Female
  • Gastrointestinal Agents
  • Gastrointestinal Tract
  • Humans
  • Male
  • Middle Aged
  • Peptides
  • Psychometrics
  • Quality of Life
  • Questionnaires
  • Receptors, Glucagon
  • Recombinant Proteins
  • Reproducibility of Results
  • Severity of Illness Index
  • Short Bowel Syndrome

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