TY - JOUR
T1 - Development of the MiNDToolkit for management of cognitive and behavioural impairment in motor neurone disease
AU - Radakovic, Ratko
AU - Copsey, Helen
AU - Moore, Carmel
AU - Mioshi, Eneida
N1 - Funding information: This work was funded by the Motor Neurone Disease Association. The authors have no conflict of interest to report. This is a summary of research part funded by the NIH Research Applied Research Collaboration East of England (ARC EoE) program. The views expressed are those of the authors, and not necessarily those of the National Institute of Health Research, NHS or Department of Health and Social Care.
PY - 2020/2
Y1 - 2020/2
N2 - Aim: To develop structured guidance, recommendations and techniques for non-pharmacological management of cognitive and behavioural impairments in motor neurone disease (MND), called the MiNDToolkit. Methods: A 4-round modified-Delphi method was utilised (online and face-to-face meeting), supplemented by recent research, recommendations, expertise from allied health-professionals (AHP) clinicians, researchers and clients. Results: Round-1 (N=47) identified AHPs techniques. Round-2 (N=23) and -3 (N=19) used expert consensus, refining general focus, specific elements and techniques. Round-4 (N=8) applied personal, lived and occupational experience, finalising the general structure and content of specific techniques. Conclusion: The MiNDToolkit is composed of multiple tools to structure decision-making through flowcharts, decision-trees and checklists, provide information about impairments, assessment recommendations and techniques or strategies for non-pharmacological management cognitive or behavioural impairments in MND.
AB - Aim: To develop structured guidance, recommendations and techniques for non-pharmacological management of cognitive and behavioural impairments in motor neurone disease (MND), called the MiNDToolkit. Methods: A 4-round modified-Delphi method was utilised (online and face-to-face meeting), supplemented by recent research, recommendations, expertise from allied health-professionals (AHP) clinicians, researchers and clients. Results: Round-1 (N=47) identified AHPs techniques. Round-2 (N=23) and -3 (N=19) used expert consensus, refining general focus, specific elements and techniques. Round-4 (N=8) applied personal, lived and occupational experience, finalising the general structure and content of specific techniques. Conclusion: The MiNDToolkit is composed of multiple tools to structure decision-making through flowcharts, decision-trees and checklists, provide information about impairments, assessment recommendations and techniques or strategies for non-pharmacological management cognitive or behavioural impairments in MND.
U2 - 10.2217/nmt-2019-0035
DO - 10.2217/nmt-2019-0035
M3 - Article
VL - 10
SP - 15
EP - 25
JO - Neurodegenerative Disease Management
JF - Neurodegenerative Disease Management
SN - 1758-2024
IS - 1
ER -