TY - JOUR
T1 - Effective public involvement in the HoST-D Programme for dementia home care support: From proposal and design to methods of data collection (innovative practice)
AU - Giebel, Clarissa
AU - Roe, Brenda
AU - Hodgson, Anthony
AU - Britt, David
AU - Clarkson, Paul
PY - 2019/11/1
Y1 - 2019/11/1
N2 - Public involvement is an important element in health and social care research. However, it is little evaluated in research. This paper discusses the utility and impact of public involvement of carers and people with dementia in a five-year programme on effective home support in dementia, from proposal and design to methods of data collection, and provides a useful guide for future research on how to effectively involve the public. The Home SupporT in Dementia (HoST-D) Programme comprises two elements of public involvement, a small reference group and a virtual lay advisory group. Involving carers and people with dementia is based on the six key values of involvement – respect, support, transparency, responsiveness, fairness of opportunity, and accountability. Carers and people with dementia gave opinions on study information, methods of data collection, an economic model, case vignettes, and a memory aid booklet, which were all taken into account. Public involvement has provided benefits to the programme whilst being considerate of the time constraints and geographical locations of members.
AB - Public involvement is an important element in health and social care research. However, it is little evaluated in research. This paper discusses the utility and impact of public involvement of carers and people with dementia in a five-year programme on effective home support in dementia, from proposal and design to methods of data collection, and provides a useful guide for future research on how to effectively involve the public. The Home SupporT in Dementia (HoST-D) Programme comprises two elements of public involvement, a small reference group and a virtual lay advisory group. Involving carers and people with dementia is based on the six key values of involvement – respect, support, transparency, responsiveness, fairness of opportunity, and accountability. Carers and people with dementia gave opinions on study information, methods of data collection, an economic model, case vignettes, and a memory aid booklet, which were all taken into account. Public involvement has provided benefits to the programme whilst being considerate of the time constraints and geographical locations of members.
KW - dementia
KW - service users
KW - carers
KW - patient and public involvement
KW - home support
KW - intervention
UR - http://www.scopus.com/inward/record.url?scp=85071985220&partnerID=8YFLogxK
U2 - 10.1177/1471301216687698
DO - 10.1177/1471301216687698
M3 - Article
VL - 18
SP - 3173
EP - 3186
JO - Dementia
JF - Dementia
SN - 1471-3012
IS - 7-8
ER -