Exploring perceptions of psychological services in a children's hospice in the United Kingdom

Jo Wray, Bruce Lindsay, Kenda Crozier, Lauren Andrews, Janet Leeson

Research output: Contribution to journalArticlepeer-review

4 Citations (Scopus)


Background: The provision of emotional and psychological support for all family members who need it is an essential element of holistic palliative care. Within East Anglia's Children's Hospice, teams of professionally trained and experienced workers offer psychosocial support to all family members at all times during the child's and family's journey. However, the effectiveness and appropriateness of current psychosocial provision is unclear, as is the requirement for any additional psychological services.
Objective: The purpose of this study was to elicit perceptions about current psychological support within the hospice from a group of stakeholders (parents, hospice staff, and external professionals).
Method: Forty-five parents participated in family focus groups, telephone interviews, individual interviews in their home, or a web-based survey. Ninety-five hospice staff (including nurses, carers, play specialists, therapists, and family support practitioners) and 28 external staff (including physicians, nurses, and commissioning managers) were seen using a mixture of focus group and individual meetings. Focus groups and meetings were held at the hospice building or at an external venue. Interviews were recorded and transcribed verbatim and analyzed using thematic coding.
Results: Two main themes addressing perceptions of current psychological provision emerged: “understanding psychological support” and “unmet psychological need.” Subthemes linked to support included choice, staff roles and labels, communication, and flexibility, whereas the themes within unmet need had a stronger focus on people and problems.
Significance of results: Understanding different user perspectives is an important first step in enhancing current psychological provision; operationalizing the findings will be challenging.
Original languageEnglish
Pages (from-to)373-382
Number of pages10
JournalPalliative and Supportive Care
Issue number05
Early online date21 Nov 2012
Publication statusPublished - Oct 2013


  • Psychological support
  • Children
  • Perceptions
  • Hospice
  • Family support

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