Abstract
Objectives: Informal carers of patients with Chronic Obstructive Pulmonary Disease (COPD) have unmet support needs. Evidence relating to carers’ support needs in chronic conditions informed version 3 of the Carer Support Needs Assessment Tool (CSNAT) which forms part of an intervention to identify and address carer support needs. Aim of study: to establish the face and content validity of CSNAT v3 for use with COPD carers and explore their views on delivery of the CSNAT Intervention in practice.
Methods: Focus groups conducted September-October 2019 in non-clinical settings recruited eleven COPD carers (two to six participants per group). COPD patients (n=2) attended one group to facilitate carer attendance, the impact of which is discussed. Most participating carers were female (n=10); carers’ ages ranged 52-79 years.
Results: CSNAT v3 was easy to understand and complete, and all 15 domains were considered relevant and appropriate, suggesting good face and content validity. The demeanour, relational skills, and knowledge of the CSNAT facilitator appeared more important to carers than being a certain practitioner type.
Discussion: COPD carers considered the CSNAT Intervention an acceptable way of identifying and responding to their needs. The intervention could potentially be delivered through a range of services.
Methods: Focus groups conducted September-October 2019 in non-clinical settings recruited eleven COPD carers (two to six participants per group). COPD patients (n=2) attended one group to facilitate carer attendance, the impact of which is discussed. Most participating carers were female (n=10); carers’ ages ranged 52-79 years.
Results: CSNAT v3 was easy to understand and complete, and all 15 domains were considered relevant and appropriate, suggesting good face and content validity. The demeanour, relational skills, and knowledge of the CSNAT facilitator appeared more important to carers than being a certain practitioner type.
Discussion: COPD carers considered the CSNAT Intervention an acceptable way of identifying and responding to their needs. The intervention could potentially be delivered through a range of services.
| Original language | English |
|---|---|
| Pages (from-to) | 532-548 |
| Number of pages | 17 |
| Journal | Chronic Illness |
| Volume | 18 |
| Issue number | 3 |
| Early online date | 24 Mar 2021 |
| DOIs | |
| Publication status | Published - Sep 2022 |
Keywords
- Chronic disease
- caregivers
- Chronic obstructive pulmonary disease
- focus groups
- intervention