Layers of Listening: A Qualitative Analysis of the Impact of Early Intervention Services for First-Episode Psychosis on Carers’ Experiences

Anna Lavis (Lead Author), Helen Lester, Linda Everard, Nicholas Freemantle, Tim Amos, David Fowler, Jo Hodgekins, Peter Jones, Max Marshall, Vimal Sharma, John Larsen, Paul McCrone, Swaran Singh, Jo Smith, Max Birchwood

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31 Citations (Scopus)
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Abstract

Aims:
By analysing carers’ accounts of their daily lives and affective challenges during a relative’s FEP against the background of wider research into EIS, this paper explores relationships between carers’ experiences and EIS.

Method:
Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS.

Results:
Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers’ emotions unacknowledged and compounding an existing lack of help-seeking.

Conclusions:
By focusing on EIS’s engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?
Original languageEnglish
Pages (from-to)135-142
JournalThe British Journal of Psychiatry
Volume207
Issue number2
Early online date21 May 2015
DOIs
Publication statusPublished - Aug 2015

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