Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences

Anna Lavis; Helen  Lester; Linda Everard; Nicholas Freemantle; Tim Amos; David Fowler; Jo Hodgekins; Peter Jones; Max Marshall; Vimal Sharma; John Larsen; Paul McCrone; Swaran Singh; Jo Smith; Max Birchwood

doi:10.1192/bjp.bp.114.146415

Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences

Anna Lavis (Lead Author), Helen Lester, Linda Everard, Nicholas Freemantle, Tim Amos, David Fowler, Jo Hodgekins, Peter Jones, Max Marshall, Vimal Sharma, John Larsen, Paul McCrone, Swaran Singh, Jo Smith, Max Birchwood

Research output: Contribution to journal › Article › peer-review

48 Citations (Scopus)

17 Downloads (Pure)

Abstract

Aims:
By analysing carers’ accounts of their daily lives and affective challenges during a relative’s FEP against the background of wider research into EIS, this paper explores relationships between carers’ experiences and EIS.

Method:
Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS.

Results:
Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers’ emotions unacknowledged and compounding an existing lack of help-seeking.

Conclusions:
By focusing on EIS’s engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?

Original language	English
Pages (from-to)	135-142
Number of pages	8
Journal	The British Journal of Psychiatry
Volume	207
Issue number	2
Early online date	21 May 2015
DOIs	https://doi.org/10.1192/bjp.bp.114.146415
Publication status	Published - Aug 2015

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10.1192/bjp.bp.114.146415

Layers of listening Lavis et al finalAccepted author manuscript, 248 KB

Joanne Hodgekins
- J.Hodgekinsuea.acuk
- Norwich Medical School - Clinical Associate Professor in Psychology
- Lifespan Health - Member
- Mental Health - Member
Person: Research Group Member, Research Centre Member, Academic, Teaching & Research

SUstaining Positive Engagement and Recovery (SuperEDEN) - the next step after Early Intervention for Psychosis
Birchwood, P., Fowler, D., Amos, T., Benington, K., Freemantle, N., Hodgekins, J., Jones, P., Larsen, J., Lester, H., Marshall, P., McCrone, P., Phipps, K., Sharma, V., Singh, S. & Smith, J.
National Institute for Health and Care Research
1/10/10 → 30/09/15
Project: Research

Cite this

Lavis, A., Lester, H., Everard, L., Freemantle, N., Amos, T., Fowler, D., Hodgekins, J., Jones, P., Marshall, M., Sharma, V., Larsen, J., McCrone, P., Singh, S., Smith, J., & Birchwood, M. (2015). Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences. The British Journal of Psychiatry, 207(2), 135-142. https://doi.org/10.1192/bjp.bp.114.146415

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title = "Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers{\textquoteright} experiences",

abstract = "Aims: By analysing carers{\textquoteright} accounts of their daily lives and affective challenges during a relative{\textquoteright}s FEP against the background of wider research into EIS, this paper explores relationships between carers{\textquoteright} experiences and EIS. Method: Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS. Results: Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers{\textquoteright} emotions unacknowledged and compounding an existing lack of help-seeking. Conclusions: By focusing on EIS{\textquoteright}s engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways? ",

author = "Anna Lavis and Helen Lester and Linda Everard and Nicholas Freemantle and Tim Amos and David Fowler and Jo Hodgekins and Peter Jones and Max Marshall and Vimal Sharma and John Larsen and Paul McCrone and Swaran Singh and Jo Smith and Max Birchwood",

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doi = "10.1192/bjp.bp.114.146415",

language = "English",

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Lavis, A, Lester, H, Everard, L, Freemantle, N, Amos, T, Fowler, D, Hodgekins, J, Jones, P, Marshall, M, Sharma, V, Larsen, J, McCrone, P, Singh, S, Smith, J & Birchwood, M 2015, 'Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences', The British Journal of Psychiatry, vol. 207, no. 2, pp. 135-142. https://doi.org/10.1192/bjp.bp.114.146415

TY - JOUR

T1 - Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences

AU - Lavis, Anna

AU - Lester, Helen

AU - Everard, Linda

AU - Freemantle, Nicholas

AU - Amos, Tim

AU - Fowler, David

AU - Hodgekins, Jo

AU - Jones, Peter

AU - Marshall, Max

AU - Sharma, Vimal

AU - Larsen, John

AU - McCrone, Paul

AU - Singh, Swaran

AU - Smith, Jo

AU - Birchwood, Max

PY - 2015/8

Y1 - 2015/8

N2 - Aims: By analysing carers’ accounts of their daily lives and affective challenges during a relative’s FEP against the background of wider research into EIS, this paper explores relationships between carers’ experiences and EIS. Method: Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS. Results: Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers’ emotions unacknowledged and compounding an existing lack of help-seeking. Conclusions: By focusing on EIS’s engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?

AB - Aims: By analysing carers’ accounts of their daily lives and affective challenges during a relative’s FEP against the background of wider research into EIS, this paper explores relationships between carers’ experiences and EIS. Method: Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS. Results: Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers’ emotions unacknowledged and compounding an existing lack of help-seeking. Conclusions: By focusing on EIS’s engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?

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DO - 10.1192/bjp.bp.114.146415

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JO - The British Journal of Psychiatry

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SN - 0007-1250

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ER -

Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences

Abstract

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Profiles

Joanne Hodgekins

Projects

SUstaining Positive Engagement and Recovery (SuperEDEN) - the next step after Early Intervention for Psychosis

Cite this