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Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences

  • Anna Lavis (Lead Author)
  • , Helen Lester
  • , Linda Everard
  • , Nicholas Freemantle
  • , Tim Amos
  • , David Fowler
  • , Jo Hodgekins
  • , Peter Jones
  • , Max Marshall
  • , Vimal Sharma
  • , John Larsen
  • , Paul McCrone
  • , Swaran Singh
  • , Jo Smith
  • , Max Birchwood

Research output: Contribution to journalArticlepeer-review

58 Citations (Scopus)
21 Downloads (Pure)

Abstract

Aims:
By analysing carers’ accounts of their daily lives and affective challenges during a relative’s FEP against the background of wider research into EIS, this paper explores relationships between carers’ experiences and EIS.

Method:
Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS.

Results:
Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers’ emotions unacknowledged and compounding an existing lack of help-seeking.

Conclusions:
By focusing on EIS’s engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?
Original languageEnglish
Pages (from-to)135-142
Number of pages8
JournalThe British Journal of Psychiatry
Volume207
Issue number2
Early online date21 May 2015
DOIs
Publication statusPublished - Aug 2015

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

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