Lived experience of caregivers of persons with dementia and the impact on their sense of self: A qualitative study in Singapore

Jane Tumola, Jiaying Soon, Paul Fisher, Philip Yap

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The prevalence of dementia is increasing, especially in Asia. Caregivers of people
with dementia are at greater risk of psychological morbidity; however, most studies on caregiving have been conducted in Western populations. As a caregiver’s experience can be influenced by cultural factors, this needs exploring further. This study explored the lived experience of caregivers of dementia patients in Singapore and the impact of caring on their sense of self. Six Chinese female spousal caregivers were interviewed and their experiences were analyzed using interpretative phenomenological analysis (IPA). Four super-ordinate themes were identified: impact of caregiving, acceptance of destiny, taking control, and view of self. The findings reflected the influence of Confucian values. Clinical implications are discussed, including more culturally sensitive services.
Original languageEnglish
Pages (from-to)157-172
Number of pages16
JournalJournal of Cross-Cultural Gerontology
Issue number2
Early online date29 Feb 2016
Publication statusPublished - Jun 2016


  • caregiver
  • culture
  • dementia
  • interpretative phenomenological analysis

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