Patient and public involvement in reducing health and care research waste

Virginia Minogue; Mary Cooke; Anne-Laure Donskoy; Penny Vicary; Bill Wells

doi:10.1186/s40900-018-0087-1

Patient and public involvement in reducing health and care research waste

Virginia Minogue, Mary Cooke, Anne-Laure Donskoy, Penny Vicary, Bill Wells

Norwich Medical School

Research output: Contribution to journal › Article › peer-review

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Abstract

Background Eighty five per cent of health research expenditure is potentially wasted due to failure to publish research, unclear reporting of research that is published, and the failure of new research studies to systematically review previous research in the same topic area, poor study design and conduct. A great deal of progress has been made to address this issue but the role of patients and the public has not been considered.

Main A small survey was undertaken, as part of a larger programme of work on reducing health and care waste, to understand the role of patients in reducing research waste. The study showed that patients are interested in this issue particularly in relation to the prioritisation of research and patient and public involvement.

Conclusions Patients undertake key roles in the research process including co-applicancy, project management, or as co-researchers. This brings responsibility for ensuring high quality research and value for money. Responsibility for recognition of the potential for wasteful practices is part of the conduct and operation of research studies.

Original language	English
Article number	5
Journal	Research Involvement and Engagement
Volume	4
DOIs	https://doi.org/10.1186/s40900-018-0087-1
Publication status	Published - 12 Feb 2018

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Cite this

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title = "Patient and public involvement in reducing health and care research waste",

abstract = "Background Eighty five per cent of health research expenditure is potentially wasted due to failure to publish research, unclear reporting of research that is published, and the failure of new research studies to systematically review previous research in the same topic area, poor study design and conduct. A great deal of progress has been made to address this issue but the role of patients and the public has not been considered. Main A small survey was undertaken, as part of a larger programme of work on reducing health and care waste, to understand the role of patients in reducing research waste. The study showed that patients are interested in this issue particularly in relation to the prioritisation of research and patient and public involvement. Conclusions Patients undertake key roles in the research process including co-applicancy, project management, or as co-researchers. This brings responsibility for ensuring high quality research and value for money. Responsibility for recognition of the potential for wasteful practices is part of the conduct and operation of research studies.",

author = "Virginia Minogue and Mary Cooke and Anne-Laure Donskoy and Penny Vicary and Bill Wells",

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T1 - Patient and public involvement in reducing health and care research waste

AU - Minogue, Virginia

AU - Cooke, Mary

AU - Donskoy, Anne-Laure

AU - Vicary, Penny

AU - Wells, Bill

PY - 2018/2/12

Y1 - 2018/2/12

N2 - Background Eighty five per cent of health research expenditure is potentially wasted due to failure to publish research, unclear reporting of research that is published, and the failure of new research studies to systematically review previous research in the same topic area, poor study design and conduct. A great deal of progress has been made to address this issue but the role of patients and the public has not been considered. Main A small survey was undertaken, as part of a larger programme of work on reducing health and care waste, to understand the role of patients in reducing research waste. The study showed that patients are interested in this issue particularly in relation to the prioritisation of research and patient and public involvement. Conclusions Patients undertake key roles in the research process including co-applicancy, project management, or as co-researchers. This brings responsibility for ensuring high quality research and value for money. Responsibility for recognition of the potential for wasteful practices is part of the conduct and operation of research studies.

AB - Background Eighty five per cent of health research expenditure is potentially wasted due to failure to publish research, unclear reporting of research that is published, and the failure of new research studies to systematically review previous research in the same topic area, poor study design and conduct. A great deal of progress has been made to address this issue but the role of patients and the public has not been considered. Main A small survey was undertaken, as part of a larger programme of work on reducing health and care waste, to understand the role of patients in reducing research waste. The study showed that patients are interested in this issue particularly in relation to the prioritisation of research and patient and public involvement. Conclusions Patients undertake key roles in the research process including co-applicancy, project management, or as co-researchers. This brings responsibility for ensuring high quality research and value for money. Responsibility for recognition of the potential for wasteful practices is part of the conduct and operation of research studies.

U2 - 10.1186/s40900-018-0087-1

DO - 10.1186/s40900-018-0087-1

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