TY - JOUR
T1 - Patients’ expectations for the functional and psychosocial outcomes of orbital decompression surgery for thyroid eye disease
T2 - a qualitative study
AU - Wickwar, Sadie
AU - McBain, Hayley
AU - Edmunds, Matthew R.
AU - Ezra, Daniel G.
AU - Rose, Geoffrey E.
AU - Newman, Stanton P.
N1 - Funding Information:
The authors would like to acknowledge those who funded the research (City, University of London and Moorfields Eye Hospital Special Trustees). DGE and GER received partial funding from the Department of Health’s NIHR Biomedical Research Centre for Ophthalmology at Moorfields Eye Hospital and UCL Institute of Ophthalmology. The views expressed in this publication are those of the authors and not necessarily those of the Department of Health.
Funding Information:
This work was funded by City, University of London and Moorfields Eye Hospital Special Trustees.
Publisher Copyright:
© 2017 Informa UK Limited, trading as Taylor & Francis Group.
PY - 2018/4/21
Y1 - 2018/4/21
N2 - Patients with appearance-altering conditions may be dissatisfied with the outcomes of reconstructive surgery due to unmet expectations. This study explored patients’ expectations of orbital decompression surgery for thyroid eye disease (TED) and whether these were met. Semi-structured interviews were conducted at two times: (1) in the weeks after patients were listed for decompression surgery and before surgery; (2) up to 12 months after surgery. Thematic analysis was performed for each time point, to identify themes within the data. Fourteen adults with TED were interviewed prior to surgery and five were followed up after surgery. Thematic analyses found: (1) Prior to surgery, patients had formed expectations through online information about the procedure, consultations with physicians, the impact TED had on their lives, and speaking to relevant others. Patients had specific expectations about the procedure, the recovery, post-operative appearance and post-operative vision. (2) After surgery, patients generally felt their appearance and well-being had improved. However, dissatisfaction was linked to unanticipated specific aspects of surgical care, recovery, or appearance. Dissatisfaction can arise from unmet expectations for the outcomes of reconstructive surgery. Physicians should be aware of the processes by which patients form expectations, for example different types and quality of online information. Ensuring that preoperative expectations are realistic could enhance satisfaction after surgery.
AB - Patients with appearance-altering conditions may be dissatisfied with the outcomes of reconstructive surgery due to unmet expectations. This study explored patients’ expectations of orbital decompression surgery for thyroid eye disease (TED) and whether these were met. Semi-structured interviews were conducted at two times: (1) in the weeks after patients were listed for decompression surgery and before surgery; (2) up to 12 months after surgery. Thematic analysis was performed for each time point, to identify themes within the data. Fourteen adults with TED were interviewed prior to surgery and five were followed up after surgery. Thematic analyses found: (1) Prior to surgery, patients had formed expectations through online information about the procedure, consultations with physicians, the impact TED had on their lives, and speaking to relevant others. Patients had specific expectations about the procedure, the recovery, post-operative appearance and post-operative vision. (2) After surgery, patients generally felt their appearance and well-being had improved. However, dissatisfaction was linked to unanticipated specific aspects of surgical care, recovery, or appearance. Dissatisfaction can arise from unmet expectations for the outcomes of reconstructive surgery. Physicians should be aware of the processes by which patients form expectations, for example different types and quality of online information. Ensuring that preoperative expectations are realistic could enhance satisfaction after surgery.
KW - patient expectations
KW - psychosocial adjustment
KW - reconstructive surgery
KW - Thyroid eye disease
KW - treatment satisfaction
UR - http://www.scopus.com/inward/record.url?scp=85025817237&partnerID=8YFLogxK
U2 - 10.1080/13548506.2017.1356930
DO - 10.1080/13548506.2017.1356930
M3 - Article
C2 - 28738723
AN - SCOPUS:85025817237
VL - 23
SP - 475
EP - 484
JO - Psychology, Health & Medicine
JF - Psychology, Health & Medicine
SN - 1354-8506
IS - 4
ER -