Personalisation and the promise of independent living: Where now for cash, care and control for disability organisations across the UK?

Charlotte Pearson, Richard Brunner, Tom Porter, Nicholas Watson

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Personalisation has dominated social care across OECD countries over the past 20 years. UK policy evolved from the efforts of disabled peoples’ organisations (DPOs) to secure the availability of cash payments as part of a wider drive to enable independent living. Implementation of personalisation across the UK has seen significant divergence in how governments have developed their own responses, but in each country the DPOs’ role and impact has shifted from campaigning and promoting the voices of disabled people to a more muted focus on service provision and limited policy engagement. This article draws on a series of interviews with DPOs and leading disabled activists. It highlights concerns raised related to themes around austerity, changing relationships with local government and the role of co-production in developing policy. We conclude the article by discussing the future directions for personalisation and developments in light of the COVID-19 pandemic.
Original languageEnglish
Pages (from-to)285-295
Number of pages11
JournalScandinavian Journal of Disability Research
Issue number1
Publication statusPublished - 3 Nov 2020

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