The adaptation of self-report measures to the needs of people with intellectual disabilities: A systematic review

Roel Kooijmans, Gabriëlle Mercera, Peter E. Langdon, Xavier Moonen

Research output: Contribution to journalArticlepeer-review

24 Citations (Scopus)


Persons with intellectual disabilities (ID) may have difficulties providing reliable and valid accounts of their personal experiences through self-report measures. The aim of the current study was to systematically review the peer-reviewed research literature on the adaptations needed to develop “ID-inclusive” self-report measures. A search of PsycINFO, PubMed, Web of Science, and Google Scholar identified 49 studies that met inclusion criteria. A GRADE-CERQual assessment was performed to determine the level of confidence in the review findings. One hundred sixty-one recommendations for the development of “ID-inclusive” self-report measures were extracted from 49 included studies. Recommendations were presented in a GRADE-CERQual Summary of Findings table, according to a five-stage model of instrument development. This review offers much-needed practical guidance for clinicians and researchers on how to develop “ID-inclusive” self-report measures. Recommendations for future research about self-report instrument development for use with people with ID are presented. (PsycInfo Database Record (c) 2022 APA, all rights reserved)
Original languageEnglish
Pages (from-to)250-271
Number of pages22
JournalClinical Psychology: Science and Practice
Issue number3
Early online date2 Feb 2022
Publication statusPublished - Sep 2022


  • Intellectual disabilities
  • Interviews
  • Psychometrics
  • Questionnaires
  • Self-report

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