The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period

Gemma Rogers, Gisela Perez‐Olivas, Biza Stenfert Kroese, Varsha Patel, Glynis Murphy, John Rose, Vivien Cooper, Peter E. Langdon, Steve Hiles, Clair Clifford, Paul Willner

Research output: Contribution to journalArticlepeer-review

47 Citations (Scopus)

Abstract

Background
Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.

Aim
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.

Methods
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.

Results
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.

Conclusions
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.
Original languageEnglish
Pages (from-to)1421-1430
Number of pages10
JournalJournal of Applied Research in Intellectual Disabilities
Volume34
Issue number6
Early online date23 Mar 2021
DOIs
Publication statusPublished - Nov 2021

Keywords

  • Covid-19
  • caring responsibility
  • children
  • intellectual disabilities
  • mothers
  • young people

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