The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period

Gemma Rogers; Gisela Perez‐Olivas; Biza Stenfert Kroese; Varsha Patel; Glynis Murphy; John Rose; Vivien Cooper; Peter E. Langdon; Steve Hiles; Clair Clifford; Paul Willner

doi:10.1111/jar.12884

The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period

Gemma Rogers, Gisela Perez‐Olivas, Biza Stenfert Kroese, Varsha Patel, Glynis Murphy, John Rose, Vivien Cooper, Peter E. Langdon, Steve Hiles, Clair Clifford, Paul Willner

Norwich Medical School

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51 Citations (Scopus)

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Abstract

Background
Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.

Aim
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.

Methods
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.

Results
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.

Conclusions
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.

Original language	English
Pages (from-to)	1421-1430
Number of pages	10
Journal	Journal of Applied Research in Intellectual Disabilities
Volume	34
Issue number	6
Early online date	23 Mar 2021
DOIs	https://doi.org/10.1111/jar.12884
Publication status	Published - Nov 2021

Keywords

Covid-19
caring responsibility
children
intellectual disabilities
mothers
young people

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10.1111/jar.12884Licence: CC BY

Research Intellect Disabil - 2021 - Rogers - The experiences of mothers of children and young people with intellectualFinal published version, 441 KBLicence: CC BY

Cite this

Rogers, G., Perez‐Olivas, G., Kroese, B. S., Patel, V., Murphy, G., Rose, J., Cooper, V., Langdon, P. E., Hiles, S., Clifford, C., & Willner, P. (2021). The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period. Journal of Applied Research in Intellectual Disabilities, 34(6), 1421-1430. https://doi.org/10.1111/jar.12884

Rogers, Gemma ; Perez‐Olivas, Gisela ; Kroese, Biza Stenfert ; Patel, Varsha ; Murphy, Glynis ; Rose, John ; Cooper, Vivien ; Langdon, Peter E. ; Hiles, Steve ; Clifford, Clair ; Willner, Paul. / The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period. In: Journal of Applied Research in Intellectual Disabilities. 2021 ; Vol. 34, No. 6. pp. 1421-1430.

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abstract = "BackgroundRecent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.AimThe aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.MethodsEight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.ResultsThree main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.ConclusionsAll mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.",

keywords = "Covid-19, caring responsibility, children, intellectual disabilities, mothers, young people",

author = "Gemma Rogers and Gisela Perez‐Olivas and Kroese, {Biza Stenfert} and Varsha Patel and Glynis Murphy and John Rose and Vivien Cooper and Langdon, {Peter E.} and Steve Hiles and Clair Clifford and Paul Willner",

year = "2021",

month = nov,

doi = "10.1111/jar.12884",

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Rogers, G, Perez‐Olivas, G, Kroese, BS, Patel, V, Murphy, G, Rose, J, Cooper, V, Langdon, PE, Hiles, S, Clifford, C & Willner, P 2021, 'The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period', Journal of Applied Research in Intellectual Disabilities, vol. 34, no. 6, pp. 1421-1430. https://doi.org/10.1111/jar.12884

The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period. / Rogers, Gemma; Perez‐Olivas, Gisela; Kroese, Biza Stenfert; Patel, Varsha; Murphy, Glynis; Rose, John; Cooper, Vivien; Langdon, Peter E.; Hiles, Steve; Clifford, Clair; Willner, Paul.

In: Journal of Applied Research in Intellectual Disabilities, Vol. 34, No. 6, 11.2021, p. 1421-1430.

Research output: Contribution to journal › Article › peer-review

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T1 - The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period

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AU - Perez‐Olivas, Gisela

AU - Kroese, Biza Stenfert

AU - Patel, Varsha

AU - Murphy, Glynis

AU - Rose, John

AU - Cooper, Vivien

AU - Langdon, Peter E.

AU - Hiles, Steve

AU - Clifford, Clair

AU - Willner, Paul

PY - 2021/11

Y1 - 2021/11

N2 - BackgroundRecent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.AimThe aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.MethodsEight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.ResultsThree main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.ConclusionsAll mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.

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The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period

Abstract

Keywords

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