The framing and fashioning of therapeutic citizenship among people living with HIV taking Antiretroviral Therapy in Uganda

Steve Russell (Lead Author), Stella Namukwaya, Flavia Zalwango, Janet Seeley

Research output: Contribution to journalArticle

18 Citations (Scopus)
13 Downloads (Pure)

Abstract

In this article, we examine how people living with HIV (PLWH) were able to reconceptualize or “reframe” their understanding of HIV and enhance their capacity to self-manage the condition. Two in-depth interviews were held with 38 PLWH (20 women, 18 men) selected from three government and nongovernment antiretroviral therapy (ART) delivery sites in Wakiso District, and the narratives analyzed. ART providers played an important role in shaping participants’ HIV self-management processes. Health workers helped PLWH realize that they could control their condition, provided useful concepts and language for emotional coping, and gave advice about practical self-management tasks, although this could not always be put into practice. ART providers in this setting were spaces for the development of a collective identity and a particular form of therapeutic citizenship that encouraged self-management, including adherence to ART. Positive framing institutions are important for many PLWH in resource-limited settings and the success of ART programs.
Original languageEnglish
Pages (from-to)1447-1458
Number of pages12
JournalQualitative Health Research
Volume26
Issue number11
Early online date5 Aug 2015
DOIs
Publication statusPublished - Sep 2016

Keywords

  • HIV/AIDS
  • Sub-Saharan Africa
  • experiences of illness and disease
  • coping and adaptation
  • users’ experiences of health care
  • self-care
  • adherence/compliance
  • qualitative research

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