Wordless intervention for epilepsy in learning disabilities (WIELD): study protocol for a randomized controlled feasibility trial

Marie-Anne Durand; Bob Gates; Georgina Parkes; Asif Zia; Karin Friedli; Garry Barton; Howard Ring; Linda Oostendorp; David Wellsted

doi:10.1186/1745-6215-15-455

Wordless intervention for epilepsy in learning disabilities (WIELD): study protocol for a randomized controlled feasibility trial

Marie-Anne Durand, Bob Gates, Georgina Parkes, Asif Zia, Karin Friedli, Garry Barton, Howard Ring, Linda Oostendorp, David Wellsted

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Abstract

Epilepsy is the most common neurological problem that affects people with learning disabilities. The high seizure frequency, resistance to treatments, associated skills deficit and co-morbidities make the management of epilepsy particularly challenging for people with learning disabilities. The Books Beyond Words booklet for epilepsy uses images to help people with learning disabilities manage their condition and improve quality of life. Our aim is to conduct a randomized controlled feasibility trial exploring key methodological, design and acceptability issues, in order to subsequently undertake a large-scale randomized controlled trial of the Books Beyond Words booklet for epilepsy.

Original language	English
Article number	455
Journal	Trials
Volume	15
DOIs	https://doi.org/10.1186/1745-6215-15-455
Publication status	Published - 20 Nov 2014

Keywords

Epilepsy
Learning disability
Intervention
Feasibility trial
Clinical protocol

Access to Document

10.1186/1745-6215-15-455Licence: CC BY

Published_VersionFinal published version, 1.07 MBLicence: CC BY

Cite this

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title = "Wordless intervention for epilepsy in learning disabilities (WIELD): study protocol for a randomized controlled feasibility trial",

abstract = "Epilepsy is the most common neurological problem that affects people with learning disabilities. The high seizure frequency, resistance to treatments, associated skills deficit and co-morbidities make the management of epilepsy particularly challenging for people with learning disabilities. The Books Beyond Words booklet for epilepsy uses images to help people with learning disabilities manage their condition and improve quality of life. Our aim is to conduct a randomized controlled feasibility trial exploring key methodological, design and acceptability issues, in order to subsequently undertake a large-scale randomized controlled trial of the Books Beyond Words booklet for epilepsy.",

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AU - Parkes, Georgina

AU - Zia, Asif

AU - Friedli, Karin

AU - Barton, Garry

AU - Ring, Howard

AU - Oostendorp, Linda

AU - Wellsted, David

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AB - Epilepsy is the most common neurological problem that affects people with learning disabilities. The high seizure frequency, resistance to treatments, associated skills deficit and co-morbidities make the management of epilepsy particularly challenging for people with learning disabilities. The Books Beyond Words booklet for epilepsy uses images to help people with learning disabilities manage their condition and improve quality of life. Our aim is to conduct a randomized controlled feasibility trial exploring key methodological, design and acceptability issues, in order to subsequently undertake a large-scale randomized controlled trial of the Books Beyond Words booklet for epilepsy.

KW - Epilepsy

KW - Learning disability

KW - Intervention

KW - Feasibility trial

KW - Clinical protocol

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